Princess Courtney is such a joy!
She has curly red/orange hair, sparkling blue eyes and
a smile so bright it lights up the whole room.
She is smart and so beautiful.
Everyone loves her so very much.
Courtney is 2 1/2 years old. She can't move,
only her hands and sometimes she can turn her neck a little.
She isn't able to stand up,walk or sit by herself.
She can't swallow so she has to be fed
a special formula that must be pumped into her g/j button.
Courtney has a trach in her neck because she has to have a
ventilator breathe for her. She can't speak but sometimes
she makes little"AHH" sounds and
her grandma  says she sounds like an angel singing.
Courtney needs someone very special to take care of her.
God chose a special mommy for her.
Her mommy is very strong, patient, smart and loving.
Her mommy has to get up every two hours at night to turn Courtney.
If Courtney doesn't get turned she could get pneumonia or bed sores.
Her feeding bag has to be checked and filled also.
Courtney has a disease called Spinal Muscular Atrophy.
She has type 1  being the most severe form of the disease.
The doctors told her mommy and grandma that she
would not live to celebrate her second birthday
and most likely would not live to be one year old.
Courtney is our little miracle !
TWINKLE TWINKLE LITTLE STAR
courtesy
of
IVY'S MIDIS


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She's our beautiful blue eyed miracle
and Courtney is her name
Since she came into our lives,
they have never been the same

So richly now, we are blessed with love
in this little red haired girl And we thank
the Good Lord nightly for sending
Courtney into our world

She speaks the language of the Angels
in whispers so soft and dear
And if you listen to her closely
her precious words of love you'll hear

Beware her eyes, they'll melt your heart
and you will never be the same
You will fall in love at first sight
with Princess Courtney, simply, plain

So please stay awhile and visit us
and if you're lucky you may hear
The language of the Angels
that Courtney speaks so clear

Copyright ©2005 Island Princess
ANGEL SHEILA